Privacy Req 5
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PRIVACY-5. DATA AGGREGATION RISK
Entities MUST assess the privacy risk of aggregating personal information, in systems and processes where it is collected, generated, used, transmitted, or stored, and wherever feasible, MUST design and operate their systems and processes to minimize that risk. Entities MUST assess and limit linkages of personal information across multiple transactions without the USER's explicit consent.
Collection of personal information from repeated data transactions, which can be associated to form a larger body of knowledge about individuals, may increase their privacy risk. For example: An Identity Provider’s ability to facilitate transactions between a user and multiple relying parties may give the Identity Provider privileged insights into the users’ behavior. Such information is the result of the Identity Provider’s ability to link user interactions across transactions.
“Users’ explicit consent” alone should not be used to mitigate privacy risks created by technical architecture or design, such as to mitigate risks that individuals could not be reasonably expected to be able to assess.
Collection of personal information from repeated data transactions, which can be associated to form a larger body of knowledge about individuals, increases their privacy risk if the aggregated data exceeds the amount and nature needed for the original purposes of collection.
References and Guidance (non-normative)
- PbD De-identification Center, https://www.privacybydesign.ca/index.php/de-identification-centre/
- See also the definition of "data aggregation" in § 164.501, and the discussions about the use of identified versus de-identified data in § 164.514(a),(b) and § 164.502(d), of the HIPAA regulations for health care transactions, 45 CFR Part 164: http://www.ecfr.gov/cgi-bin/text-idx?node=pt45.1.164&rgn=div5
- See OASIS Privacy Management Reference Model (PMRM) v1.0: Section 4.2 ("Service Details").
Further reference materials to aid organizations interested in conforming to these Requirements can be found at the wiki page Supplemental Privacy Guidance; this has been archived at https://workspace.idesg.org/kws/public/download.php/56/Supplemental-Privacy-Guidance.docx
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